Our HIE Life: Seizures

Having a brain injury comes with the risk of seizures.  Zephy has had a brain injury since birth and has faced ongoing seizures in the NICU during the first few days of her life.  At that time, the doctor was able to figure out the right dosage to control it.  About a month and a…

Our HIE Life: Big News!

😢 Cry with us.  😊 Smile with us.  😳 Stress with us.  🤗 Praise God with us!  I’ve been sitting on some news and I’m ready to share. We are moving to Hawaii!! Cry with us:  We are leaving our home here in Okinawa.  We have been here for 8 years.  Fabian and I met here, we got…

Our HIE Life: Confessions of a Medically Fragile Baby

Hello World!😊 Mommy is too busy to blogalog…so I wanted to tell you all the cool things that were happening in this little life of mine…cause I’m gonna let it shine!🙌  I went to an old Okinawan castle!  It was sooo cool.  I saw lots of trees.  On the path daddy found a turtle and…

10 Popular Books That Relate to Special Needs

I’ve always enjoyed reading aloud a good book to a classroom of students.  Usually the best type of books were filled with bright illustrations, memorable characters, age appropriate concepts, juicy vocabulary, and of course, a story entertaining enough to not only capture a little one’s attention, but also the reader who may get asked to…

Our HIE Life: Baby’s Day Out- Real Giraffes

When Zephy was in the NICU, I read lots of books to her.  One of my favorite books to read to her was a baby non-fiction board book about Giraffes.  My hope for her was that one day she could visit a zoo and see a real life giraffe.  Such a small wish for a…

Our HIE Life: Beautifully Flawed

I always write about hope, but today I want to write about beauty.  After a long hard day, I had a sweet reminder about beauty that refreshed my soul like fresh flowers in a vase. Every year I ask children to draw a picture of themselves…a self portrait.  With a giant black marker, a huge…

Our HIE Life: 9 Months Old

Hey little girly, When I touch your hair on top of your head, I can’t help but think about your brain.  With every gentle stroke I whisper a prayer to God asking Him to heal your brain and make you whole. When I dab your tears falling out of the outer corner of your eyes,…

Our HIE Life: Day in the Life of Zephy

Bathing.  Feeding.  Diapering. What else could a baby need, right? “Let all that you do be done in LOVE.” 1Cor 16:14 As first time parents we had no idea the work it would take to care for a little one.  Add in special needs and our life became…interesting.  Overtime, we’ve learned to take care of…

Our HIE Life: Baby’s Day Out- Ice Cream

“Let’s take Zephy out today.”  I said to my husband while I sat on the couch to do my morning pump. Fabian sat contentedly on his recliner chair digging into half a watermelon.  “Sure.  Where do you want to go?” “Hmm…”  I thought.  Where do I want to go?  Is there something specific I want…

Our HIE Life: Cerebral Palsy

Three months ago I stumbled upon something I would consider invaluable.  I joined an online fb group of about 2500 parents from around the world whose child had suffered from HIE (Hypoxic Ischemic Encephalopathy).  It’s an amazing group of people who face trials of many kinds on a daily basis concerning their little one.  It…

To All Women Great and Strong

Look in the mirror and who do you see? A woman who’s strong and blessed as can be? A woman of grace? Or a tiresome face? Someone who ran an impossible race? Your hair tells your mood pulled back or unbrushed, you wished you could curl it if you weren’t in a rush. Your eyes,…

Our HIE Life: Home Sweet Home

It feels sooo good to be home! I think being stuck at the hospital really affected my whole self- physically, mentally, and spiritually.  It was a very difficult month.  But I’m very relieved to be back home with my baby, my husband, and our two dogs. I’ve set up a routine here at home so…